Stories & Community

Real Stories, Real Strength.

Discover inspiring stories from families who have walked the same path. Their words offer hope, encouragement, and strength.  

  • Family stories (written or video) 

  • Patient artwork and creative submissions 

  • Submit your story

Goal: Encourage connection and peer support. 

  • Event calendar: meetups, webinars, informational sessions.  

SIOPEN patient advocates


  • Patient Advocate Committee chair

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  • Patient Advocate Committee Co-chair

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  • Patient Advocate Committee Co-chair

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